Charles Bonnet Syndrome (Visual Hallucinations in people with sight loss)


Charles Bonnet Syndrome is a condition where people with sight loss experience visual hallucinations. In this talk, Judith Potts of Esme’s Umbrella will give an overview of Charles Bonnet Syndrome and also explain some of the very new and exciting developments in research in this area.

Esme’s Umbrella www.charlesbonnetsyndrome.uk

00:00 – Start
00:53 – Intro
01:22 – Judith Potts
01:33 – Esme’s Story
05:44 – What is Charles Bonnet Syndrome
07:57 – The Launch of Esme’s Umbrella
09:10 – Esme’s Rooms Support Groups
09:40 – Esme’s Friends Telephone Support Groups
10:45 – Coping Strategies
10:56 – Medication
11:13 – Factors that make CBS worse
13:08 – Research into CBS
13:12 – How Charles Bonnett Syndrome was Discovered
15:14 – Dr Kat De Silva Newcastle University – Comparing the Brains of people with sight loss who have CBS with those who don’t
16:22 – Getting CBS recognised as a condition in its own right
17:33 – Dr Jasleen Jolly – Brain Activity during Hallucinations
18:42 – Dr Matt Dunn – The Role of Peripheral Vision
19:12 – Prof Mariya Moosajee – The effects of Lockdown on Charles Bonnett Syndrome
20:07 – Children with Charles Bonnett Syndrome
21:21 – Falls in people with Charles Bonnet Syndrome
22:33 – Using Dogs to warn of impending hallucinations
25:13 – The Future
25:27 – More research needed
25:55 – NHS Pathway for Charles Bonnet Syndrome
26:51 – #WiseUp2022 Campaign
27:48 – Questions
27:52 – Question – Triggers for Hallucinations
30:20 – Question – Prevalence in acquired sight loss in comparison to congenital sight loss
32:45 – Question – Charles Bonnet in people with Dementia
33:33 – Question – Being woken up by hallucinations
36:58 – Question – Charles Bonnet Syndrome in people with both Sight and Hearing Loss
39:08 – Experience of Hallucinations
42:53 – Question – Has the pandemic increased incidents of CBS
44:32 – Question – Is it the brain looking for stimulation
46:59 – Question – Are hallucinations of people dead relatives
49:45 – Experience of Hallucinations
50:59 – Coping Strategies
52:39 – Question – Does CBS occur when dreaming